We are now in Room 1032A
Well, once again the rug has been pulled from under us. With literally one minutes notice we were shuffled out of our 2 person room into a 4 person room one floor below at about 8pm tonight. Needless to say it was a panic situation getting everything packed up and when we arrived on the 10th floor the nurses are asking who is this and why is he here - no one told us he was coming....great communication. Thanks to Vonnie, Richard and Jenna who stayed around to help me move I did not have my nervous breakdown until I got in the car tonight!
So we sat in a waiting room while they prepared a bed for Gord in the "ward". He was falling asleep in his wheelchair and not a happy camper. Who said our hospitals "care" for the patients or take their best interests to heart???? I don't think care is in their vocabulary. Sorry Shelley but tonight was brutal and I am going to speak my truth. To top it all off here is a direct quote from our Health Minister Ron Liepert in today's Herald: "Damn it all, I'm sick and tired of people whining about not enough health-care facilities in the city". I am wondering if he has ever had a loved one fall ill and have to go through the He-- I have gone through with Gord. It honestly feels like we are an inconvenience. The nurse today sighed loudly every time she had to come into our room to help with something. Nice....makes everyone feel good.
And get this.....Gord has a curtain that can be pulled right around his bed. The wheels on the track squeek so loud it is unnerving. I cannot believe that in this day and age they would not know about WD40! Guess I have to do something about it. Problem is, every time I make a squeek, everyone has it out for me and I am not a popular person to have around. Makes it very difficult to get the best for my guy.
I just hope he sleeps tonight. Every move is an adjustment and he really is sensitive to it.
Now for the good news! Prior to the move announcement, we had a great card game going in the room with Gord, Vonnie, Richard and Jenna playing "Fish". Gord knew what they were playing and did very well. He knew what his cards were and who to ask for cards. It was amazing!
When we went for our walk this afternoon with his cousins, we went to the deli again and this time he did not want french fries, he pointed to the menu and wanted a garden burger. I got it for him and he happily devoured 1/2 of it. Once again, empowerment. When he was finished and tired of the conversation he said clearly : "Well, let's go!".
If anyone out there has any influence to get him into the Brain Trauma Center in Ponoka please HELP me. Marnie called me today, Ruth and I thank you so much for the connection.
To Ralph and Donalda - any help you can give would be appreciated.
I will try my best to get the paperwork started as quickly as possible.
Til later......
Love
Sheila who is almost at the breaking point!!!!
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SORRY TO HEAR ABOUT THE ROOM CHANGE AND YOUR CHALANGES WITH THE STAFF.
ReplyDeleteIT IS GREAT TO HEAR ABOUT GORDS INPROVEMENTS.WITH ANY LUCK,YOUR HOSPITAL STAY WILL IMPROVE.
STAY STRONG MY FRIEND.I WILL SEE YOU SOON.
Hi Sheila
ReplyDeleteWell it is amazing to me that they are switching beds like that. When my mothe was in hospital we wanted her moved to the bed near the window as it was empty and we were told that would not be possible as it costs MONEY every time they move patient. GO figure.
I would suggest talking to your doctor and request that he move Gord to Ponoka. Or talk to the social worker and see what she can do. When Leni's Dad was sent to Ponoka it was at the suggestion of the social worker and a person who does assessments on patients.
There was a really great Social owrker in Ponoka we had. I will see if Leni's sister remembers her name. If so I will get ot to you.
Because our health care is so wonderful if is important that Gord has great family support. Could you imagine if he did not have you and his family to make sure he gets what he needs.
The bright light in all of this is how well Gord is doing
Leni really enjoyed his vist with you guys the other day. He said Gord looked great.
Stay Strong. Take care
Sandy and Leni
DEAR SHEILA AND GORD
ReplyDeleteMY HEART IS WITH YOU AS YOU PROGRESS THROUGH THESE CHANGES. I AGREE THAT REAL COMMUNICATION WOULD BE A GOOD THING
SHEILA, I REALLY ADMIRE THE LOVE AND DEVOTION THAT YOU ARE SHOWING GORD. YOU ARE BOTH AMAAZING.
I WILL ASK SOME QUESTIONS ABOUT THE PONOKA BRAIN CENTER THIS WEEK AT THE HOSPITAL AND WHEN I SEE OUR FAMILY DR.
STAY STRONG. OUR PRAYERS ARE WITH YOU.
ARLENE AND BRYAN
Hi Sheils,
ReplyDeleteJust got home from the Dr and in his view, the Ponoka facility deals primarily with the brain injured as opposed to people who have had a stroke.
There is an excellent facility at one of the Edmonton hospitals and a smaller facility in Red Deer. We have been so impressed with the Red Deer Hospital each time we have needed them.
More news as we know it.
Fondly, Arlene.
Dear Sheila and Gord,
ReplyDeleteWe have really appreciated the blog and have been regularly reading and keeping up with how both of you are doing. You are so right, the strain and energy drain for both of you is absolutely beyond imagination. It is such a blessing to learn of each step of progress you are making Gord. Every inch of your journey comes with a huge amount of effort; hang in there and keep it going. The ultimate reward will be sooooo well worth every bit of effort. We are all praying for you, cheering you on. I think you have a vast cheering section out here. May your energy and good spirits prevail every day, may the Lord sustain you in every need you have, and may your recovery be complete!
I am flying to Maui Sunday March 1 with Erin and her three girls. Dorothy will join us on March 5. We are looking forward to a few days of 'girl time' together there. I will come home on March 12, (when Alan arrives) and they will stay on for the month. Sure will miss seeing you there this time. It is a true saying.....it will not be the same without you.
Keeping you in our love and prayers,
Kay Krussman